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Posts Tagged ‘FOP’

Fibrodysplasia Ossificans Progressiva [da]

fredag den 19. oktober 2012

Fibrodysplasia Ossificans Progressiva (FOP for short) is a very rare disease that causes parts of the body (muscles, tendons, and ligaments) to turn to bone when they are damaged. This can often cause damaged joints to fuse together, preventing movement. Unfortunately surgical removal of the bone growths is ineffective as the body “heals” itself by recreating the removed bone. To make matters worse, the disease is so rare that it is often misdiagnosed as cancer, leading doctors to perform biopsies which can spark off worse growth of these bone-like lumps.

The most famous case is Harry Eastlack (see photo) whose body was so ossified by his death that he could only move his lips. Harry lived to 39 years of age. Prior to his death Eastlack agreed to donate his body for scientific study. His skeleton is on display at the Mütter Museum in Philadelphia, Pennsylvania

The diagnosis of this disease is very rare with only a few hundred cases being reported worldwide.

There is no cure.